Host Lori La Bey talks with Meryl Comer, Co-founder of Women Against Alzheimer’s, A-List team member and co-principal investigator for the PCORI Alzheimer’s Patient/Caregiver Powered Research Network (AD-PCPRN)  and Joan M. Griffin, Associate Professor of Health Sciences Research at the Mayo Clinic. Call in and join the conversation on research and support.

Panel

Join Lakelyn Hogan, gerontologist and caregiver advocate for Home Instead Senior Care®. Lakelyn will be answering your caregiving questions live. You can also email questions in advance:
livechat@homeinstead.com

At the 2018 UsAgainstAlzheimer’s “National Alzheimer’s Summit: Uniting Communities for a Cure,” Panelists will explore how health systems, researchers, and communities are usinginnovative models and technologies to upskill caregivers, engage in research, and to ease the hardship of Alzheimer’s on families. The panel will also put the spotlight on recommendations on how to better leverage technology to support caregivers identified by NIH’s first-ever National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers.

Moderator: Meryl Comer, Founding Board Member, UsAgainstAlzheimer’s
Jay Newton-Small, Co-Founder of MemoryWell
Sara Czaza, PhD, Cross-Cutting Chair for Technology- NIH Research Summit on Care,
University of Miami
Winifred V. Quinn, PhD, Director, Advocacy & Consumer Affairs, AARP/Ctr to Champion
Nursing
Leda Rosenthal, Founder of Alzyouneed.com

Offering a unique perspective on the importance of technology and the role it plays in the life of the family caregiver.

The Home Care Association of America (HCAOA) is committed to connecting and educating its members, advancing workers’ skills and meeting the needs of America’s seniors.

The 2nd Inconvenient Truth of the 21st Century: ALZHEIMER’S DISEASE

“All the facts were known and nothing stood in our way. Nothing. That is except ourselves.”

“We have not allowed ourselves to comprehend what failure might mean-for how we remember the past, for how we think about the future.”

August 9, 2018 – The New York Times

As women are now living longer than ever before in society, we are focused on ensuring that the interface of health and wealth is fully understood by our community. Our mission is to create a community that spurs dialogue, action and transformation by enlightening and empowering women through the sharing of their collective knowledge and influence, and by tapping the wisdom of preeminent thinkers and industry pioneers.

Join authors featured in “The Momentum of Hope” and experts in moral injury for a discussion and readings from the book – a vivid and moving collection of essays by people who have experienced trauma and made the journey to recovery. It offers perspectives from veterans, ministers working for justice, Holocaust survivors and caregivers.

Join us as we celebrate stories from authors such as Rev. Jim Wallis of Sojourners, Meryl Comer, co-founder of Women Against Alzheimer’s, Rev. Starsky D. Wilson, chair of the Ferguson Commission, and Kim Campbell, widow of Glen Campbell, who have all shared their incredible stories of suffering and redemption.

Volunteers of America is proud to share these stories, a discussion guide and extensive list of resources which can be found in “The Momentum of Hope.”

We will hold this event at the InterContinental Hotel at the Wharf in Washington, D.C. with views of the Air Force Memorial, the Pentagon, and Arlington National Cemetery. Wine, beer and hors-d’oeuvres will be served.

Please join us in celebrating what we have accomplished for advancing women’s brain health in our first 5 years, help us honor those catalysts that have been instrumental in our success, and hear about how we plan to raise the bar moving forward.

The Aging2.0 Caregiving Forum, hosted on May 1st in San Francisco, will bring together a carefully curated group of ~200 of ‘the best of the best’ thought leaders and innovators in caregiving. The action-oriented day will be full of rich discussion and very targeted networking opportunities with and among like-minded experts and change agents. This one-day event is exclusive to Aging2.0 Alliance members and invited guests that are considered the leading thought leaders and experts.

Engage with a panel of experts about Alzheimer’s and brain health.

Women’s Athletic Club downtown from 11:30am to 1:30pm

Neiman Marcus at Northbrook Court from 5:30 to 7:30pm

Join the discussion of what it’s like to participate in a clinical trial, how to find out about them, and why it’s important to participate.

Meryl Comer, Author, Alzheimer’s Caregiver, Clinical Trial Participant

Reisa Sperling, MD, Alzheimer’s researcher, Harvard

Geri and Jim Taylor, Alzheimer’s Clinical Trial Participants

Nate O’Keefe, Founder of Roobrik, Decision-Making Tools for Families

The NIH AD Research Summits are key strategic planning meetings tied to the implementation of the first goal of the National Plan to Address Alzheimer’s: to treat and prevent Alzheimer’s disease by 2025. They bring together a multi-stakeholder community including government, industry, academia, private foundations, and patient advocates to formulate an integrated, translational research agenda that will enable the development of effective therapies (disease modifying and palliative) across the disease continuum for the cognitive as well as neuropsychiatric symptoms of Alzheimer’s disease.

Women’s brains are more vulnerable to Alzheimer’s disease and other problems associated with cognitive function. Women are twice as likely as men to have Alzheimer’s and dementia and twice as likely to care for a loved one with the disease.

Yet, until now, there has been virtually no concerted drive to fund research on women’s brain health around the world and no global cooperation among women leaders.

Women’s Brain Health Initiative Canada, WomenAgainstAlzheimer’s USA, Alzheimer’s Research UK, and 21st Century BrainTrust® have formed the Global Alliance on Women’s Brain Health to raise awareness of women’s brain health challenges and significantly expand funding for sex-based brain health research and education, that benefits both men and women.

The largest international meeting dedicated to advancing dementia science. Each year, AAIC unites the world’s leading researchers, next generation investigators, clinicians and the care research community to share discoveries in basic and translational research that will lead to methods of prevention and treatment, and improvements in diagnosis for Alzheimer’s disease and other dementias.

Historically, there have been limited opportunities for those on the Alzheimer’s & Dementia journey to be heard or provide collective feedback regarding “what matters most” to them from new therapies.  Today, a collective voice is needed to support regulatory decision-making, reimbursement, technology testing and other types of research.

Meryl Comer, President, Geoffrey Beene Foundation Alzheimer’s Initiative and 21-year caregiver will share novel ways that those living with the disease and their care partners can influence and impact the research agenda through a vibrant A-List online community.  Brett Hauber, Senior Economist / VP from RTI Health Solutions will discuss the latest initiative to link new qualitative and preference studies to inform the FDA.  Paula Garrett, Sr. Director, Marketing, Eli Lilly and Company will explain the novelty and importance of this approach to drug development. The audience will experience and engage in a What Matters survey, using new polling technology.

Emmy-award winning broadcast journalist and leading Alzheimer’s advocate Meryl Comer’s Slow Dancing With a Stranger is a profoundly personal, unflinching account of her husband’s battle with Alzheimer’s disease that serves as a much-needed wake-up call to better understand and address a progressive and deadly affliction.

When Meryl Comer’s husband Harvey Gralnick was diagnosed with early onset Alzheimer’s disease in 1996, she watched as the man who headed hematology and oncology research at the National Institutes of Health started to misplace important documents and forget clinical details that had once been cataloged encyclopedically in his mind. With harrowing honesty, she brings readers face to face with this devastating condition and its effects on its victims and those who care for them. Detailing the daily realities and overwhelming responsibilities of caregiving, Comer sheds intensive light on this national health crisis, using her personal experiences—the mistakes and the breakthroughs—to put a face to a misunderstood disease, while revealing the facts everyone needs to know.

Alzheimer’s Speaks Radio believes in giving voice to those afflicted with memory loss and their care partners, while empowering them to live purpose-filled lives. Our goal is to raise awareness, give hope and share the real everyday life of living with dementia. We look forward to you joining us for great conversation, learning and laughter as we maneuver this roller coaster called memory loss. About our host, Lori La Bey: memory loss has been part of Lori’s life for over 30 years, ever since her mother started having problems. Lori’s Mom was in her end-stages of Alzheimer’s disease for 4 years and passed away in 2014. This journey has taught her much and has changed her life. Lori is an international force shifting our dementia care culture around the world. She speaks and trains on Alzheimer’s disease, dementia, caregiving and collaboration. You can reach Lori via her resource website: www.AlzheimersSpeaks.com.

Alzheimer’s remains one of the least understood diseases, yet it is one of the leading causes of death in our country. As you may have heard on NBC news recently, the latest reports indicate that 1 in 6 women and 1 in 11 men will be diagnosed with Alzheimer’s over the age of 65 and that women are 2x more likely to suffer from Alzheimer’s than breast cancer!

You’re probably aware of Alzheimer’s disease, but did you know that this disease is an epidemic affecting millions of people? Right here in Florida there are 500,000 people living with this disease and 1.5 Million serving as their caregivers. In Palm Beach County, 50,000 residents are already diagnosed with this condition, and anywhere from 60,000 to 75,000 individuals are now likely living in the early, undiagnosed stages.

Additionally, the cost of Alzheimer’s is truly a human and financial tragedy in our country.  In terms of actual dollars, the cost of Alzheimer’s will reach over $183 billion this year alone. Caring for those suffering from Alzheimer’s and other forms of dementia has other costs for the work force, in terms of personal stress and lost work hours.  Alzheimer’s disease and other dementias cost American businesses at least $61 billion a year, just in lost productivity, related to employees providing care for individuals with Alzheimer’s or other dementias.

The Alzheimer’s Association® is leading the fight against this devastating disease, but they can’t do it alone. It is business and community partners, such as YOU, who can make really make a difference by taking a leadership role in raising funds for research and promoting awareness of this devastating disease. This is the only leading disease in our country that has no survivors—your efforts will help make that no longer true!

The END of Alzheimer’s begins with YOU!!

Hosted by Baylor Scott & White Health. Sponsored by The John A. Hartford Foundation Change AGEnts Initiative in collaboration with The Gerontological Society of America

Women. We bring home the bacon and freeze our eggs. We learn from an early age how to multi-task (in heels while walking backwards—you have to be of a certain age to get that one).  We take care of things, and people. That’s what we do.  But what happens to us, to our brains, as we are busy taking care of everyone and everything?  Women are twice as likely to suffer from Alzheimer’s as men, making up two thirds of the 5.4 million people in the United States slowly dying with the disease; and women are two thirds of the caregivers. Once women reach 65, they have twice the likelihood of developing Alzheimer’s than breast cancer. The burden multiplies when you consider caregivers. They frequently put their careers on hold and drain their own savings to provide care. One in five switches to part-time work, sacrificing hundreds of thousands of dollars in lost wages and benefits. Brain disease goes far beyond Alzheimer’s of course.  There are so many women who are on the bleeding edge of this work—in the labs and in the think tanks, in the trenches and in our homes. Come meet the brains behind numerous innovative advances in the study of brain health.  Learn about provocative new technologies and bold solutions as our panelists unabashedly share how they are tackling the hard stuff.  They’ve got the chutzpah, the moxie, and the smarts to power through the status quo.  Join us for a memorable conversation.

Moderator

Robin Strongin, Founder of Disruptive Women in Health Care, will moderate this roundtable.

Panelists

Corinna E. Lathan, Ph.D., Board Chair and Chief Executive Officer, Anthrotronix

Meryl Comer, President and CEO, Geoffrey Beene Foundation Alzheimer’s Initiative,

Glenna Crooks, Ph.D., Founder, SageLife, LLC